The Endometriosis Network Canada
The Endometriosis Network Canada is a volunteer-run, incorporated, not-for-profit organization whose mission is to facilitate & promote a patient-centred approach to managing endometriosis. We aim to reduce the diagnostic delay from 8 – 12 years that frequently follows visiting multiple doctors, and receiving conflicting or incorrect information. Long delays in diagnosing endometriosis result in more years of pain and suffering, and lost productivity. Living with debilitating symptoms without a diagnosis often results in dismissal of symptoms by friends, family, and medical professionals, and this can lead to anxiety, depression, and social isolation.
To accomplish this we are working to provide:
- Education of teens to ensure earlier recognition of symptoms
- Education for those with endometriosis, and their support people
- Increased awareness of endometriosis in the general public
- A support network accessible nationwide through the use of online forums, social media, and in-person support programs
The Endometriosis Network Canada will work to reduce the burden of living with such a life-altering condition.